History


Welcome

Welcome to the website for The State of the States in Intellectual and Developmental Disabilities Project, housed at the Kansas University Center on Developmental Disabilities, and funded by the U.S. Administration for Community Living.

Project of National Significance

The State of the States in Intellectual and Developmental Disabilities Project is one of three Longitudinal Data Collection Projects authorized under the Developmental Disabilities Assistance and Bill of Rights Act of 2000 (DD Act) as a Project of National Significance.

Summary

The State of the States in Intellectual and Developmental Disabilities project was initiated in 1982 to investigate the determinants of public spending for intellectual and developmental disabilities (ID/DD) services in the United States. In other words, we track money. The Project has developed a 40-year record of revenue, spending, and programmatic trends in the 50 states, the District of Columbia, and the United States as a whole. Analysis of the data shows the impact over time of federal, state, and local government fiscal policy. The data reveals important service delivery trends in the states for community living, public and private residential institutions, family supports, supported employment, supported living, technology solutions, and Medicaid Waivers. Demographic data includes general population, personal income, and total state budget.

Terms

Intellectual and Developmental Disabilities (ID/DD) - a disability characterized by limitations in intellectual functioning and adaptive behavior before the age of 22

Projects of National Significance (PNS) - focus on the most pressing issues affecting people with ID/DD and their families