State of the States in Intellectual and Developmental Disabilities

What Does the State of the States in IDD Mean to You?

A Critical Resource for People with Intellectual and Developmental Disabilities Needs Your Voice

For more than 40 years, the State of the States in Intellectual and Developmental Disabilities—recognized as a Project of National Significance—has provided trusted data on public spending for intellectual and developmental disabilities (IDD) services across the United States.

These data help policymakers, researchers, advocates, and families better understand how services are funded, how systems evolve, and how supports impact real lives in communities nationwide.

The Impact of These Data

Policy innovation and research that drive inclusive change on the local, state, and national level
Critical Training in I/DD data and data accessibility to advance leadership in policy, education, research, and practice
Services and supports that help individuals with IDD live, work, and thrive in their communities

Why This Matters

Good decisions depend on good data.

State of the States has helped leaders, families, and advocates better understand how public resources are invested and how those investments shape opportunities for people with intellectual and developmental disabilities.

Ensuring continued access to accurate, transparent information supports thoughtful planning, accountability, and long-term progress. Every American with or without disabilities deserves a chance to live with dignity.

How You Can Share Your Voice

Please share how State of the States in Intellectual and Developmental Disabilities has impacted your life in the survey.