Resources
National Disability Agencies and Related Resources
The Consortium for Citizens with Disabilities (CCD)
CCD is a coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
Intellectual and Developmental Disabilities
American Association on Intellectual and Developmental Disabilities
AIDD
Association of University Centers on Disability
AUCD
The Arc of the United States
ARC-US
Autism Society of America
ASA
Inter-Agency Autism Coordinating Committee
IACC
The Council for Exceptional Children
CEC
Guide for Parents
Some basic facts about cerebral palsy for parents and families
The Council on Quality and Leadership in Supports for People with Disabilities
(The Council)
Exceptional Parent (EP) magazine
provides information, support, ideas, encouragement and outreach for parents and families of children with disabilities, and the professionals who work with them.
Fundación John Langdon Down
Joseph P. Kennedy, Jr. Foundation
National Association of Councils on Developmental Disabilities
NACDD
National Disability Rights Network (Protection and Advocacy Organizations)
NDRN
National Association for State Directors of Developmental Disabilities Services
NASDDDS
National Down Syndrome Society
National Down Syndrome Society
Self Advocates Becoming Empowered
Self Advocates Becoming Empowered
Sibling Leadrship Network
Sibling Leadrship Network
United Cerebral Palsy
United Cerebral Palsy
Mental Health
Federal Agencies
The Access Board
A federal agency committed to accessible design.
Administration on Disabilities
US government organization responsible for implementation of the Developmental Disabilities Assistance and Bill of Rights Act of 2000, known as the DD Act. AOD, its staff and programs, are part of the Administration for Community Living, U.S. Department of Health and Human Services.
Agency for Health Care Research and Quality (AHRQ)
Healthcare research
Assistant Secretary for Planning and Evaluation (ASPE)
Bureau of Economic Analysis (BEA)
U.S. Department of Commerce
Centers for Disease Control and Prevention (CDC)
Centers for Medicare and Medicaid Services
Congressional Budget Office (CBO)
Congressional Research Service
provides access to a list of its publications.
FedStats
Links to more than 100 US federal agencies providing data and statistics.
General Accounting Office (GAO)
Recent reports from the General Accounting Office (GAO)
Library of Congress
Social Security Administration (SSA) programs, Disability, Old Age Survivors In…
Thomas
Comprehensive locator information about Congress’ legislation.
The U.S. Department of Justice ADA
Forms for filing ADA complaints, ADA regulations and technical assistance materials, ADA enforcement status reports, ADA settlements and consent decrees.
United States Office of Management and Budget (OMB)
Latest Federal budget.
Department of Housing and Urban Development
National Institutes of Health
National Institute of Child Health and Human Development
National Institute of Neurological Disorders and Stroke
National Science Foundation
Office of Disability Employment Policy
Office of Special Education and Rehabilitative Services
National Institute on Disability, Independent Living, and Rehabilitation Resear…
Rehabilitation Engineering Research Centers
State Information
A list of all states’ I/DD agencies
Association of University Centers on Disabilities (AUCD)
formerly the American Association of University Affiliated Programs (AAUAP)
University Centers for Excellence in Developmental Disabilities by State
Intellectual and Developmental Disability Research Centers by State
National Association of Councils on Developmental Disabilities (NACDD)
National Association of Protection and Advocacy Associations (NAPAS)
National Association of State Budget Officers
National Association of State Medicaid Directors
National Association of State Mental Health Program Directors (NASMHPD)
National Research Institute. Bibliographic information; data on mental health policy, financing.
National Conference of State Legislatures (NCSL)
Information on state budget and policy issues; legislation.
National Governors Association (NGA)
Executive priorities in the states; budget issues.
Private Research Institutes
Affordable Colleges for Visually Impaired
Students
Center on Budget and Policy Priorities
Economic Policy Institute (EPI)
Online publications related to health policy and managed care including The State of Working America, January 2012.
Mathematica Policy Research
Weconnectnow
linking students with disabilities to higher education opportunities.
Disability Data & Statistics
Access to Disability Data @ InfoUse
Data resources including chartbooks, statistical charts, tables and surveys.
Center on Human Policy
Syracuse University
Disability Statistics Center
Disseminates statistical information on disability and the status of people with disabilities in American Society.
Institute on Community Integration
University of Minnesota
Institute for Community Inclusion
University of Massachusetts, Boston
National Center for the Dissemination of Disability Research
Conducts research, dissemination and utilization activities, demonstration projects, and technical assistance.
U.S. Disability Statistics
Cornell University